- (no subject)
- October 18th, 2011
After just over two months in hospital, Tristan was finally discharged yesterday.
Basically he was found to have been born with a dislocated neck so it's quite a serious condition, or...rather it has the potential to be serious. It's not causing him any problems now and we had taken him to the hospital for what they think was some sort of chest virus. They did a scan of his chest to see if there was anything on it (incidentally, it was shadowy, meaning there was probably some wet patches in his lungs which made it hard for him to breathe and subsequently made it difficult for him to eat) and accidentally found that two of the vertebrae in his neck were dislocated. The consultant in charge of Tristan said that while it must be very upsetting to see the scans of Tristan's neck (it damn well was!) that academically, it's fascinating to him since he shows no symptoms of a neck injury and he reckons that Tristan's neck must have actually GROWN this way from about two weeks after conception. He will have to go back for surgery, unfortunately, but the consultant won't operate till he's sure he's strong enough and won't even think about it before Tristan's 6 months anyway. He's actually been going to different neurosurgery conferences around the world (he's in India this week and Milan, next week) and taking cds and pictures and laptops with Tristan's scans on it to show others to see if they've seen the condition before and if so, how they treated it. He's got a good idea what he wants to do as far as surgery goes, but it's always nice to have a second opinion, I guess.
Aside from that, Tristan is still needing oxygen (that virus they think was actually him aspirating when he sicked up-he has reflux which doesn't help with the sicking-up) because while the shadowy bits on his lungs went away (and he stopped needing oxygen while they were away) they've come back again. He's gaining weight really well now but still small for his age but the paediatrician reckons he was just born small and will be smaller for a while till he catches up and that as long as he's gaining weight, it's not really anything to worry about. He's in a brace for his neck but luckily, doesn't seem to mind wearing it.
In all we spent two months and nine days in hospital. First at Preston Royal, then to Alder Hey to repair a completely unrelated to anything hernia, then back to Preston, then back to Alder Hey again. Alder Hey was an amazing hospital (it's a specialist children's hospital and one of the best in Europe)-all (well, most) of the staff were brilliant, the neurosurgeons looking after him were great and all the staff, even cleaners and housekeepers were friendly and would stop and have a chat with you or make silly faces at Tristan to make him smile. I've told them I want all his care to be Alder Hey from now on because it's so great.
So anyway, we're home, but not completely out of the storm yet. We'll be back to Alder Hey probably weekly or bi-weekly for check-ups till he has his surgery and it's not been decided when that'll be.